Maggie is doing better today. She probably will come home on oxygen unless she improves dramatically over the next few weeks. I am a little discouraged that she has backtracked. Last week she was doing so great and they were thinking maybe a Christmas homecoming- which, honestly, made me nervous it seemed so fast. But now it will be at least a few weeks longer and I am so disappointed- I wish I had appreciated her good days a lot more!
But someone reminded me again today how truly amazing she is doing compared to what's she been through and that I shouldn't lose sight of that. And I definitely needed to hear that. I just don't want her to have to be on oxygen for long or have any long-term lung problems. I guess I was getting too overconfident when she was doing so well and have been reminded that she is still so tiny and so fragile and still 5 weeks from her due date! Poor little thing- her Type A mother is putting too much pressure on her and just needs to let her take her sweet time growing and getting strong!
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It's so hard when they take a step backward - it's hearbreaking. But the bigger she gets the stronger she'll get, and her setbacks will get smaller and smaller until you finally get to bring her home! Our prom baby was on oxygen until he turned 1, and it's really not a big deal. Kind of a pain because you're always dragging a hose around, but you'll handle it just fine. I promise it will seem easy after the NICU ride! Hang in there. She's doing great!
ReplyDeleteI am so glad to hear Maggie is continuing to grow and improve! Truly, you get used to tubes and hoses and beeping equipment and meds and syringes and alcohol swabs and endless rounds of doctor visits, but it is all temporary, and one by one you get discharged from specialists and the equipment company picks up that last O2 tank and you start to forget it all! The main thing is to TRUST... makes me think God has a plan for us type-A moms. Continue to be such a strong advocate for your baby. Stay healthy! Taylor
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